Skip to main content

Did you have a good day?

I decided to write this post as a Mummy of a little boy who is on the Autism Spectrum and has very limited speech and understanding, I wanted to give a glimpse into our world.

He had been for a school trip to a small local airport and this is the story of collection and journey home....

As I walked through the door I almost heard the sigh of relief from the teachers, "Mummy is here" was said in that slightly high pitched tone mixing happy and stress all at the same time. OB runs towards me shouting Mummy then collapsed on the floor just by my feet telling me "I want yo see animals and go to Legoland". OK I think to myself here we go, I bent down to his level and said in that slight high pitched fake happy tone that it was time to get into Mummy's car, but he was getting distressed the word Lego was being said repeatedly. I noted he did not have his Lego (Lego goes everywhere with him) I enquired about said Lego, luckily it was quickly found, this seemed to calm for at least two mins. His TA and I took this opportunity grab a hand each as we walk him to the car. He is just saying Legoland and animals at this time while I am informed he did a lot of walking and ate two chicken goujons.

We get into the car, our routine of every car trip starts with him getting in the front seat, he changes the radio to disk and then selects track five from the frozen soundtrack and sits down his seat. As I buckle his seat belt and gave him a kiss on the cheek I ask him if he had a nice day he responded with I go to legoland.

I sit down in in the front seat and take a deep breath, as I am trying to set up the SatNav all I hear  is Mummy lets leave, Mummy go, this gets louder to an almost scream as I tried my hardest to get the SatNav working my stupid fingers unable to hit the right buttons. Finally we stared our journey home, I again asked how his day was, I know to ask short to the point questions, did you see a fire engine, did you see an aeroplane nothing just silence filled the car as track five came to an end the only words I hear are again again.

As we came to the traffic lights we had a melt down over the fact they were red and we could not move, I gave him my phone as we had a melt down over the light being green and he wanted the lights to be red again, big tears falling down his cheeks. As he finds his favourite song on spotify, gravity belts throughout the car, he still knows exactly when tack five has finished again again echoes out for the second time.

I decided to ask about his day one last time as we got closer to home, I got "I go to Legoland I go to Legoland" and nothing else. The only time I got anything more was when we he realised we were going home, then the demands for Legoland got more and more by the time we made it to the front door and I went to undo his seat belt, huge tears were falling down his face as he shouts for Legoland got louder and louder. I wrap my arms around him and pick him up he collapses in my arms sobbing and repeating legoland.

This is all I know about his day, when in the safety of the house and settled I asked again this time I got are are you crazy mummy with a huge smile and asked me to turn the TV over as "I don't like this one"......

As we are all aware Autism is a huge spectrum but I hope sharing this will help to give an idea about our life raising a child on the spectrum.  After speaking with his teachers I find out he was well behaved and they were very proud of him, he walked with the other children and sat while a talk took place, this would not have happened two months ago. My boy did well and apparently had a great time, thanks for the teachers for sitting me down to tell me this it means a lot.

The Dad Network
>br /> >br />
Running in Lavender


“Our


Brilliant blog posts on HonestMum.com

Comments

  1. Oh my dear, I have no words for you really. I have spent most of my career working with children with Autism and you're right it's such a large spectrum. But I also know that at the same time that I can't fully know what it's like. This post does that. I hope others will read it and find comfort. Am glad you asked the teachers too...It must have offered a lot of relief to you to know how well behaved and how much fun he had.

    ReplyDelete
    Replies
    1. Thanks Martyn, it seems to be a popular post, it's one of those things I had to do. He is an amazing little boy who finds life tough sometimes but on the flip side is happy in his world and we make sure he is secure and has the routine he needs x

      Delete
  2. Thank you for sharing this glimpse into your world. I have no personal experience of Autism so I can't even begin to imagine how any of this must feel, I can only send you my heartfelt wishes from one mum to another and hope things get easier for you.

    Kate x

    ReplyDelete
  3. Thank you Kate! it's a world we never knew about and we are slowly starting to understand. life is slowely becoming easier and his speech is increasing. Your kind words are appreciated xxx

    ReplyDelete
  4. I'm also one who has no first-hand experience of Autism, but your post certainly paints a vivid picture. I now understand a bit more why you need the other pursuits (mud, cakes and wine) to keep you sane. I hope to be able to help a bit by exchanging gardening info with you.

    ReplyDelete
    Replies
    1. Hi Mark thank you, your right i find the garden a total distraction from everything else and a glass if wine helps. I love your blog and reading what your upto and really enjoy our chats and your knowledge sharing x

      Delete
  5. This sounds so very very familiar. I am a learning assistant in a school for special needs children. I have 6 autistic boys in my class and I can imagine life at home is a mixture of very tough times, and very loving proud times. Thank you for sharing and raising awareness. Sending love to you both, #SundayStars.
    Amanda. x

    ReplyDelete
    Replies
    1. Thanks Amanda, your very right some real lows but some huge highs and a sense of pride in our little boy. I hope this just gives a small insight into our lives xx

      Delete
  6. My stepson is on the spectrum, not as far as your's but enough to make every day more challenging. The most annoying thing is to the naked eye people on the spectrum look the same.

    ReplyDelete
    Replies
    1. Very true, it's so hidden and misunderstood

      Delete
  7. gosh this sounds tough, its really interesting to be given a glimpse into your everyday life thanks so much for sharing and linking up to #sundaystars

    ReplyDelete
    Replies
    1. Thank you Amy! can be hard work esp the non response as you find out nothing. But I promise we have some real fun time too xxx

      Delete
  8. I have to smile reading this, finally I have found someone who has the same problem with traffic lights as us! Traffic lights, or anything that stops the car moving, causes major meltdowns in our car. I have to laugh other wise I would cry! I hate autism and the lack of words, and not being able to share or get excited about experiences. It breaks my heart x

    ReplyDelete
    Replies
    1. thank you for your comment, Autism is very hard to deal with and as with the traffic lights you can not win. Its the strange world of silence that feels normal to us xxx

      Delete
  9. You're spot on with the repitition and the fixations that autism presents our children with. It's so difficult to manage at times and so rewarding at others.
    Thanks for linking up with #SSAmazingAchievements

    ReplyDelete
    Replies
    1. Thank you so much and so pleased your liked the post, I hope in a small way we can bring light into the world of autism xx

      Delete

Post a Comment

Popular posts from this blog

Annual Seeds Review

A little while ago I wrote a post, I was full of excitement because we had sewn a few packets of seeds on a small side border. I had visions of a border carpeted in the most wonderful flowers.

Annual seeds to update border

Sadly this has not been the case, we watered them and I did not even weed for a while as I was not sure what was growing weed or wild flower.

We are now mid-August and this is what we have.




Well, not a huge success is it? I have to laugh at how sad these two flowers look.


There a couple reasons I know they have not worked, my youngest son has turned into a plant destroyer. He has pulled off petals and whole flower heads, he stomps through the border snapping plants under his small podgy feet. Then factor in slugs and snails who think they were planted as a tasty treat.




We have had some success and they are very pretty just a shame not in abundance.





Will I try this again? yes, I will try this again and in the same place. Next time I will sew a lot more seeds, they are not t…

Front Garden Grow Your Own

Introducing our garden equivalent to the messy cupboard. You know the place where you shove all the stuff you are not sure what to do with, this is the same but in our front garden. The problem is we look at this every day from our kitchen window.





Time for action, we moved to this house as its fairly rural, we wanted space to grown some veggies and have chickens. Its now 7 years later and we have not done any of it. 

We sorted the area and Mr MC&W went off to the tip with a boot full of rubbish that we had been hiding including an old washing line.



As you can see the ivy has remained, this was meant to go but we checked for nests and found a blackbirds nest, so we have left it alone allowing them to raise their chicks.


We decided the way forward is for raised troughs, they are higher meaning we can easily see from the kitchen window. In order to maximise the space we have, we found three different sizes of troughs to see what worked best and measured them out using bean poles, you cou…

Growing Dahlia Plants from seed

Earlier this year I stumbled on a link called "Blooms for Bees", you would need to grow Dahlia plants from seed and then count the number of bees on the flowers and submit your finding. I am a huge fan of bees and thought it would be fun.

One morning a beautiful envelope dropped through the letter box containing three small packets of seeds. I was excited but also a little concerned as I have never really grown anything from seed. I have seen my Mum grow vegetables from seeds, we grew up in a house where in spring we were dodging plants on window sills in fact everywhere, but I had never really caught the bug. Maybe to do with the fact I worked in hotels and never had any garden or space to call my own.

First stop was the garden centre to buy a seed tray and seed compost. I happily sewed the seeds, placed them on a sunny windowsill and waited. I did not have anything to water them with so found an old baby cup, it tricked out the water perfectly.




Not all the seeds germinated bu…